There are a lot of protocols out there with many claims. We would like to caution you to evaluate each carefully and completely. Please know we have placed them here to share our research and make it readily available to you. We strongly advise that you consult with your physician before starting any protocol. Our personal belief is in combining the traditional and alternative approach to treatment. We like to particularly emphasize the combination of Mind, Body & Spirit.
ALS Untangled / Dr. Richard Bedlack
This is BY FAR the best collection of protocols / alternative treatments. Dr. Bedlack and his capable team have spent years gathering the data, evaluating them, doing research and have ranked them and given their findings. I would trust this site completely and make your individual decisions on what to try. Base this decision on your own research and what feels right to you under the supervision of your doctors.
Most of the ALS community regards this site very highly. Dr. Bedlack is devoted to finding treatments and a potential cure to ALS.
Deanna is an ALS patient. Her father created this protocol for her and others based on what’s worked for her. Major components of this protocol is the integration of AAKG, AKG, Ubiquinol, 5-HTP, Niacin, and GABA. More information on the functions of these medications below.
Patricia Kane (PK) Protocol
Patricia Kane created this protocol based on detoxification of the gut with Phosphatidylcholine and Glutathione IV therapy. More information on the functions of this protocol below.
Dr. Terry Wahls is a respected physician, researcher and author. She has changed the face of MS and given millions hope with her integrative approach to healing chronic auto-immune conditions with food and some essential supplements and lifestyle. Most of her concepts and research is also pertinent to other neurodegenerative conditions such as ALS.
The Wahls Protocol is an integrative approach to healing chronic auto-immune conditions by a doctor, researcher, and sufferer of progressive multiple sclerosis whose TEDx talk is who decided to get her vitamins, minerals, antioxidants, and essential fatty acids from the food she ate rather than pills and supplements.
Mark Machester Protocol
Mark Manchester was diagnosed with ALS in 2011. He was in a wheelchair by the end of 2012 and by 2015 he could no longer move any part of his body and was dependent on a feeding tube and ventilator. Slowly beginning in 2017 and continuing in 2018 and 2019, Mark begin to improve.