EATING FOR HEALING
Eating for Healing is a system of nutritional programs designed to physically and mentally benefit ALS patients no matter their condition. We see health as not only food and fitness, but mentality as well. We believe that feeding your mind and soul is just as important as feeding your body. Our family believes in feeding your body as you would feed your mind; purely.
This diet/ nutrition plan is designed for patients at a stable(not perilously low) weight and seeking to overall feel better. Now just a disclaimer, this meal plan is not specifically designed to stop or drastically reduce the rate of the patient’s neuronal degeneration, though there have been several reports on ALS TDI Forums in which patients have experiences slowed progression and have had increased strength after as little at 2-3 weeks once they implemented a Paleo Diet into their treatment plan.
The majority of you have most likely heard of the Paleo Diet all over. It is very well known in the functional medicine and wellness community to boost focus and reduce or completely get rid of symptoms that commonly tag along with ALS such as nausea, headaches, muscle weakness, muscle stiffness, depression, and fatigue.
To make it simple, this diet plan requires you to eliminate three of our most infamous guilty pleasures- added sugar, dairy, and all grains. I highly suggest this diet for someone who uses a feeding tube for the majority or all of the patients daily nutrition.
If you are looking for further evidence supporting the effects of the Paleo Diet I have attached testimonials in the form of books, videos, and articles including Paleo’s effects on Neurological Disorders in the top-right corner of the screen .
The typical “Ketogenic Diet” has been around for many years with different variations such as the Atkins Diet or the South Beach Diet, but the current and most effectively proven ketogenic program is characterized by high fats, low carbohydrates, and moderate protein. A ratio of fat to protein to carb intake in terms of calories obtained from each macronutrient would desirably be 75:20:5.
This is less of a diet and more of a lifestyle as it provides many fulfilling effects to anyone who commits to such a meal plan such as heightened focus, greater energy, potential from greater muscle density, and increased growth hormone. A ketogenic diet through various research studies as well as many ALS testimonials on websites(that will be linked in the Helpful Links tab) has been proven to protect motor neurons from further degeneration upto 30% more than a typical western diet.
One major concern that prevents patients from following through with a ketogenic diet is the high chance of weight loss. In ALS, patients are struck with a very heighted metabolic rate resulting in rapid weight loss. This is a growing challenge for most of the ALS community as patients struggle to maintain their weight and strength especially as oral feeding becomes increasingly difficult.
Our suggested ALS variation of this “diet” that has proven fairly well for us is more of a ketogenic-paleo blend. This nutritional plan strongly recommends elimination of inflammatory foods such as dairy, sugar, and unnatural sweeteners and preservatives. Now, what we suggest to add to daily supplementation if pursuing a Ketogenic Diet to minimize muscle loss would be MCT Oil, Branch Chain Amino Acids(BCAA’s), Beta-hydroxy-beta-methylbutyric-acid(HMB) in conjunction with Resveratrol and Leucine, and exogenous ketones(or ketone esters if available or ketone salt if stomach can take it). In addition to the additional supplements, our variation of the diet would include all natural foods, slightly increasing the carbohydrates and the protein to minimize weight loss. With these changes, the exogenous ketones come in to maintain ketone production. With these variations, the protein intake should be near 0.75 grams for each pound of body weight and carbohydrates should not exceed 100 grams daily.
There are a lot of supplements out there with many claims. We would like to caution you to evaluate each carefully and completely. Please know we have placed them here to share our research and make it readily available to you. We strongly advise that you do your own research and/or consult with your physician before starting any supplements. It is easy to get on many different ones. Make your choices wisely and see how each impacts how you feel. Our personal belief is in combining the traditional and alternative approaches to treatment. We like to particularly emphasize the combination of Mind, Body & Spirit.
- An amino acid which produces Seratonin, a neurotransmitter which aids as an antidepressant and also calms down the muscles.
- Part of the Deanna Protocol.
- A short chain fatty acid.
- It is important for creating tolerance in the gut and promoting an anti-inflammatory environment.
- Important for intestine functionality
- Activates the NRF-2 pathway.
- The NRF-2 pathway is very important for detoxification.
Vitamin E and C
- Help support immune function, strengthen connective tissue, and generally help maintain the entire function of your body.
- Vitamin C also helps with glutamate uptake, so a deficiency in C could be creating the abnormally high glutamate levels that may contribute to nerve death.
- Vitamin E has been shown in certain studies to play a role in ALS prevention and potentially to be beneficial for managing symptoms.
A huge part of the Coimbra Protocol.
- Immunoregulatory role.
- Stimulates regenerative substances in the brain.
- It has been correlated that areas further from the equator have increased incidence of autoimmune conditions, indicating a correlation between Vitamin D levels and autoimmune disease susceptibility.
- Binders “bind” all the toxins in the body to facilitate excretion of it.
- Some binders are Chlorella, Zeobind and Pectasol-C.
- Chlorella is an algae that binds to toxic heavy metals.
- Low levels of magnesium and calcium are common in ALS patients.
- Studies have shown that when the environmental levels of calcium and magnesium are consistently low, that the absorption of heavy metals is increased.
- Helps to reduce inflammation in the body. Ovoid fillers
- Restores brain health.
- Helps boost your immune system.
- A phospholipid which improves communication between nerves by increasing choline and acetylcholine levels in the brain.
- Part of the PK Protocol.
A powerful antioxidant and key component of mitochondrial function.
- Strong antioxidant effects and may help strengthen the immune system.
- Helps with sleep
Helps with mitochondrial function
- AKA B12
- Ultra-high dose methylcobalamin can significantly prolong survival and retard progression in ALS if administered early.
- As an intramuscular injectable, it has been reported to provide energy and muscle strength and reduces limb weakness and atrophy in ALS.
- Helps to decrease inflammation.
- An antioxidant (helps decrease oxidative stress)
- Helps with mitochondrial function.
- Used often by athletes to increase muscle strength
- May help boost energy supplies to weakening muscles and deteriorating motor nerves.
- Boosts immune system
- Can improve respiratory and pulmonary function.
- Glutathione is the body’s master antioxidant and is the most powerful antioxidant for the brain and entire nervous system.
- Combats oxidative stress, detoxifies the body, supports the immune system, and assists in cell function and repair.
- Once ingested, coconut oil converts into ketone bodies that can be used by cells as energy.
- In ALS, the mitochondria malfunction so by giving the body another source of energy, we can prolong cell vitality.
Creates ketone bodies (see above).
Helps to restore gut bacteria balance
- Medical Marijuana (Cannabis)
- Cannabis can be used as an analgesic, muscle relaxant, bronchodilator, saliva reducer, appetite stimulant, sleep inducer and antidepressant. Cannabis also has strong antioxidant and neuroprotective benefits
BASIC FEEDING TUBE/PEG GUIDELINE
- Pump- If feeding done continuously over 24 hours, use Portable Pump
- If feeding done part of the day (cycle feeding), preferred feeding done at night while you sleep.
Tube Feeding Schedule:
- Start Day 1 feeding with xx mL per hour over xx hours
- If by Day 4 the amount is comfortable, continue with Day 4 amount
- Feeding tubes in stomach: maximum rate in 140 mL/hr
- Before AND After feeding = Flush feeding tube with water (50 cc)
Tube Feeding Position:
- Sit UP during feeding
- In Bed: use a wedge pillow to prop yourself up at least 45 Degrees
- After Feeding sit UPRIGHT for 1 HR (to prevent formula entering lungs if you vomit)
Tube Feeding Instructions:
- Clean Hands
- Gather things in clean area
- Close Roller Clamp
- Wipe top of formula can with clean towel
- Pour amount of formula into feeding bag (max= 4 cans at a time or 1000 mL)
- If feeding run throughout day or night = pour 6-8 hours work of formula per feeding time
- Slowly OPEN roller clamp & allow formula to run through the tubing, THEN CLOSE the clamp (this gets air out of tubing)
- Draw amount of water needed (50 cc) on syringe and place it in the tube
- Unclamp feeding tube
- Flush feeding tube
- Reclamp feeding tube
- Disconnect Syringe
- ALWAYS reclamp feeding tube before removing catheter tip syringe (to avoid leakage)
- Clamp feeding tube BETWEEN EACH syringe of formula (Prevent leakage)
- Move clamp (to avoid kinking of tube)
- ALWAYS flush feeding tube BEFORE AND AFTER feeding, medication or additional liquids (30 – 60 mL)
- Must be liquid or powder form (to prevent clogging)
- NO Enteric coated, Extended-release (XR), or Slow-release (SR) tablets or capsules must be given via feeding tube
- Do NOT mix different medications together
- Take 30 Minutes BEFORE eating: Omeprazole (Prilosec), Esomeprazole (Nexium), Lansoprazole (Prevacid)
- NOTE: liquid medications may contain SORBITOL (causes bloating, cramping, diarrhea IF not taken as directed)
Steps to Take Medication:
- Clean Hands
- Clean area
- Unclamp feeding tube
- Flush tube with 30-60 mL of water
- Clamp feeding tube
- Pour medication into cup
- Add 30 mL (1 oz.) of water into that cup
- Draw solution into syringe
- Attach syringe to feeding tube
- Unclamp tube and gently push in medication
- Reclamp tube
- Attach water (30-60 mL) to feeding tube
- Unclamp tube and flush thoroughly
- Reclamp BEFORE removing syringe
- NOTE: if water moves too SLOWLY, REPEAT flushing
- Wash ALL parts of the syringe and equipment with warm water
- Let supplies Ari Dry
Clear Liquids (anything SEE THROUGH) you can take at room Temp:
- Black Coffee
- Clear Juices (White Cranberry, White Grape, Apple)
- Can Use AquaGuard (impermeable dressing to cover) or Dry Pro’s PICC Line Protector and XeroSox (Waterproof Sleeve)
- Safe in well monitored private pool (not used by pets) and ocean (unpolluted)
- No Public pools (unless you know bacteria count), Lakes, Ponds, and Hot tubs
- No Swimming AFTER heavy rain
SAMPLE HOME-MADE PEG TUBE FEED RECIPES
High-Fat Immune System Booster Feed
- 2 Tbsp MCT Oil-260 Calories
- 2 Tbsp Olive Oil-240 Calories
- 2 Tbsp Brain Octane Oil-260 Calories
- ½ cup Macadamia Nuts-480 Calories
- ½ cup Pine Nuts-450 Calories
- 1 cup Warm Canned Coconut Milk-450 Calories
- Warm Fresh Green Juice as needed-20 Calories
- 2 Scoops Bulletproof Collagen Protein-90 Calories
- 2,700 Total Calories
- 238g Fat
- 51g Protein
- 80g Carbohydrates
High-Calorie Energy Booster Recipe.
- 1 Whole Avocado-322 Calories
- 1.5 cups Coconut milk-750 Calories
- 2 Tbsp MCT Oil-260 Calories
- ½ Cup 100% Cacao Dark Chocolate-640 Calories
- 2 Tbsp Olive Oil-240 Calories
- 1 Banana-105 Calories
- 2 Scoops Weigh Protein-300 Calories
- 2 Tbsp Avocado Oil-240 Calories
- 2,832 Calories
- 174g Fat
- 57g Protein
- 103g Carbohydrates
“The Wahls Protocol”
A link to Dr. Terry Wahls ‘The Wahls Protocol’ book on Amazon about how she(a Multiple Sclerosis patient) got her life back after being in a tilt-recline wheelchair three years after her diagnosis utilizing the Paleo Diet as well as adopting new therapeutic practices and treatments along the way.
A link to an Amazon collection of Dr. David Perlmutter’s ‘Grain Brain’ books that he wrote to reveal to people the hidden Neurological benefits to being on a all natural(Paleo) diet.
Bernardo Coelho “5 ALS Rules”
A video of Bernardo Coelho explaining how he feels the Paleo Diet(as well as 4 of his other “ALS Rules” he learned along the way) is what allowed him to conquer ALS.
“The Paleo Approach”
A link to Dr. Sarah Ballantyne’s book ‘The Paleo Approach’ on Amazon published to enlighten her readers on the wide range of different conditions and disorders the Paleo Diet can be beneficial for.
“The Paleo Diet”
A link to a book on Amazon by Dr. Loren Cordain called ‘The Paleo Diet’ written to educate readers about the potential this diet has to achieve “optimal health,” as Dr. Cordain words it.
The “ALS Diet”
A link to a youtube video of Dr. David Steenblock speaking to his viewers about ALS on a more molecular level as well as stressing the need to detoxify your body of harmful chemicals such as toxic yeast, mercury, and toxic bacteria from your gut through a low sugar diet or the ‘ALS Diet,’ which turns out to be a slight variation of the renewed Paleo Diet.