ALS MasterMind Summit

ALS Heroes held our inaugural, first of its kind, ALS MasterMind Summit February 1-3, 2019 in Sugar Land, Texas. The goal of this summit was to find effective treatments and hopefully a cure for ALS. We brought together 32 of the world’s most insightful clinicians, scientists and key opinion leaders on ALS with the collective expertise in cell signaling, detoxification, nutrition, electrical energy, genetic signature, muscle atrophy, regenerative medicine and infectious diseases for 3 in-depth and captivating days. The overlying purpose was to dive deep, collaborate and to develop protocols to treat both early and advanced stage ALS patients and give hope to those who currently have none. The group had the combined expertise and experience of over 180 years of research and clinical applications of addressing the underlying etiologies and the mechanism of ALS. 

The ALS MasterMind Summit reviewed the current literature and treatment options, innovative and cutting edge therapies in addition to proof of concept case studies that are saving lives by complete or partial reversal/arrest of ALS progression. This included but was not limited to method and timing of detoxification, nutritional support, autoimmune components, plasmapheresis, stem cells and the role of bacteria, fungi, and mold in immune response and disease progression. The pathologies of early and advanced/ late stage ALS present a host of challenges from locomotion, food intake, absorption, infections, triggers, respiratory difficulties, thrombosis, muscle weakness and atrophy and emotional stability that may require stabilization prior to therapy. The MMS team collectively agreed that the cases of complete or partial ALS reversals were due to a multifaceted therapeutic plan that required real-time patient assessment in order to personalize therapy based on patient response (risks and benefits). This included dosing, route of administration, frequency, spatial separation of medications, patient improvement and adverse reactions. This may foster a robust immune response, energy restoration, nutritional uptake and increased respiratory index that can improve patient outcomes.

The summit highlighted early biomarkers such as gene activity or silencing, protein post modification, the significance of algae, treating Lyme disease, calcium regulation and the role of gallbladder meridian analysis that collectively present a molecular signature of ALS in addition to suggesting that the microenvironment may be driving disease progression. The Lalji ALS Foundation believes that a personalized multidisciplinary approach protocol, that incorporates traditional, functional and Eastern medicine will synergistically address the hallmarks of disease progression associated with ALS. We are committed to curing ALS in this lifetime. The cure or cures for ALS is no longer seen as an unachievable goal once we have collaboration and commitment from all those who are working on it around the world.