Eating for Healing is a system of nutritional programs designed to physically and mentally benefit ALS patients no matter their condition. We see health as not only food and fitness, but mentality as well. We believe that feeding your mind and soul is just as important as feeding your body. Our family believes in feeding your body as you would feed your mind; purely.
This diet/ nutrition plan is designed for patients at a stable(not perilously low) weight and seeking to overall feel better. Now just a disclaimer, this meal plan is not specifically designed to stop or drastically reduce the rate of the patient’s neuronal degeneration, though there have been several reports on ALS TDI Forums in which patients have experiences slowed progression and have had increased strength after as little at 2-3 weeks once they implemented a Paleo Diet into their treatment plan.
The majority of you have most likely heard of the Paleo Diet all over. It is very well known in the functional medicine and wellness community to boost focus and reduce or completely get rid of symptoms that commonly tag along with ALS such as nausea, headaches, muscle weakness, muscle stiffness, depression, and fatigue.
To make it simple, this diet plan requires you to eliminate three of our most infamous guilty pleasures- added sugar, dairy, and all grains. I highly suggest this diet for someone who uses a feeding tube for the majority or all of the patients daily nutrition.
If you are looking for further evidence supporting the effects of the Paleo Diet I have attached testimonials in the form of books, videos, and articles including Paleo’s effects on Neurological Disorders in the top-right corner of the screen .
The typical “Ketogenic Diet” has been around for many years with different variations such as the Atkins Diet or the South Beach Diet, but the current and most effectively proven ketogenic program is characterized by high fats, low carbohydrates, and moderate protein. A ratio of fat to protein to carb intake in terms of calories obtained from each macronutrient would desirably be 75:20:5.
This is less of a diet and more of a lifestyle as it provides many fulfilling effects to anyone who commits to such a meal plan such as heightened focus, greater energy, potential from greater muscle density, and increased growth hormone. A ketogenic diet through various research studies as well as many ALS testimonials on websites(that will be linked in the Helpful Links tab) has been proven to protect motor neurons from further degeneration upto 30% more than a typical western diet.
One major concern that prevents patients from following through with a ketogenic diet is the high chance of weight loss. In ALS, patients are struck with a very heighted metabolic rate resulting in rapid weight loss. This is a growing challenge for most of the ALS community as patients struggle to maintain their weight and strength especially as oral feeding becomes increasingly difficult.
Our suggested ALS variation of this “diet” that has proven fairly well for us is more of a ketogenic-paleo blend. This nutritional plan strongly recommends elimination of inflammatory foods such as dairy, sugar, and unnatural sweeteners and preservatives. Now, what we suggest to add to daily supplementation if pursuing a Ketogenic Diet to minimize muscle loss would be MCT Oil, Branch Chain Amino Acids(BCAA’s), Beta-hydroxy-beta-methylbutyric-acid(HMB) in conjunction with Resveratrol and Leucine, and exogenous ketones(or ketone esters if available or ketone salt if stomach can take it). In addition to the additional supplements, our variation of the diet would include all natural foods, slightly increasing the carbohydrates and the protein to minimize weight loss. With these changes, the exogenous ketones come in to maintain ketone production. With these variations, the protein intake should be near 0.75 grams for each pound of body weight and carbohydrates should not exceed 100 grams daily.
A link to Dr. Terry Wahls ‘The Wahls Protocol’ book on Amazon about how she(a Multiple Sclerosis patient) got her life back after being in a tilt-recline wheelchair three years after her diagnosis utilizing the Paleo Diet as well as adopting new therapeutic practices and treatments along the way.
A link to an Amazon collection of Dr. David Perlmutter’s ‘Grain Brain’ books that he wrote to reveal to people the hidden Neurological benefits to being on a all natural(Paleo) diet.
A video of Bernardo Coelho explaining how he feels the Paleo Diet(as well as 4 of his other “ALS Rules” he learned along the way) is what allowed him to conquer ALS.
A link to Dr. Sarah Ballantyne’s book ‘The Paleo Approach’ on Amazon published to enlighten her readers on the wide range of different conditions and disorders the Paleo Diet can be beneficial for.
A link to a book on Amazon by Dr. Loren Cordain called ‘The Paleo Diet’ written to educate readers about the potential this diet has to achieve “optimal health,” as Dr. Cordain words it.
A link to a youtube video of Dr. David Steenblock speaking to his viewers about ALS on a more molecular level as well as stressing the need to detoxify your body of harmful chemicals such as toxic yeast, mercury, and toxic bacteria from your gut through a low sugar diet or the ‘ALS Diet,’ which turns out to be a slight variation of the renewed Paleo Diet.
-Pump- If feeding done continuously over 24 hours, use Portable Pump
-If feeding done part of the day (cycle feeding), preferred feeding done at night while
Tube Feeding Schedule:
-Start Day 1 feeding with xx mL per hour over xx hours
-If by Day 4 the amount is comfortable, continue with Day 4 amount
-Feeding tubes in stomach: maximum rate in 140 mL/hr
-Before AND After feeding = Flush feeding tube with water (50 cc)
Tube Feeding Position:
-Sit UP during feeding
-In Bed: use a wedge pillow to prop yourself up at least 45 Degrees
-After Feeding sit UPRIGHT for 1 HR (to prevent formula entering lungs if you vomit)
Tube Feeding Instructions:
-ALWAYS reclamp feeding tube before removing catheter tip syringe (to avoid leakage)
-Clamp feeding tube BETWEEN EACH syringe of formula (Prevent leakage)
-Move clamp (to avoid kinking of tube)
-ALWAYS flush feeding tube BEFORE AND AFTER feeding, medication or additional liquids (30 – 60 mL)
-Must be liquid or powder form (to prevent clogging)
-NO Enteric coated, Extended-release (XR), or Slow-release (SR) tablets or capsules must be given via feeding tube
-Do NOT mix different medications together
- Take 30 Minutes BEFORE eating: Omeprazole (Prilosec), Esomeprazole (Nexium), Lansoprazole (Prevacid)
-NOTE: liquid medications may contain SORBITOL (causes bloating, cramping, diarrhea IF not taken as directed)
Steps to Take Medication:
Clear Liquids (anything SEE THROUGH) you can take at room Temp:
-Clear Sodas (7-Up, Sprite, Ginger Ale, Seltzer, Gatorade)
-Clear Juices (White Cranberry, White Grape, Apple)
-Can Use AquaGuard (impermeable dressing to cover) or Dry Pro’s PICC Line Protector and XeroSox (Waterproof Sleeve)
- Safe in well monitored private pool (not used by pets) and ocean (unpolluted)
-No Public pools (unless you know bacteria count), Lakes, Ponds, and Hot tubs
-No Swimming AFTER heavy rain
2 Tbsp MCT Oil--
2 Tbsp Olive Oil--
2 Tbsp Brain Octane Oil--
½ cup Macadamia Nuts--
½ cup Pine Nuts--
1 cup Warm Canned Coconut Milk--
Warm Fresh Green Juice as needed--
2 Scoops Bulletproof Collagen Protein--
2,700 Total Calories
1 Whole Avocado--
1.5 cups Coconut milk--
2 Tbsp MCT Oil--
½ Cup 100% Cacao Dark Chocolate--
2 Tbsp Olive Oil--
2 Scoops Weigh Protein--
2 Tbsp Avocado Oil--
Copyright © 2018 ALS Heroes - All Rights Reserved.