BE A PART OF THE FIGHT AGAINST ALS
“WE CAN’T LET ALS DEFINE US. LET’S JOIN HANDS AND PUT AN END TO THIS DEVASTATING DISEASE.”
-Dr. Ayeez Lalji, Inspiration of ALS Heroes.
Our mission to find innovative treatments, protocols, and technologies to improve the quality of life of ALS patients and help move the needle along towards a cure for ALS.
Our vision is to help create a world where ALS is a treatable and manageable disease rather than an underfunded and terminal one.
ALS Heroes honors the heroes amongst us who have chosen to claim their own destiny, dedicating their lives to overcoming our common adversary, ALS.
ALS Heroes is about honoring the heroes amongst us who have stared devastation in the face only to say “you do not define me!” We hope to guide these heroes in navigating their resources and provide them with hope in the midst of a seemingly hopeless disease.
Watch and listen to the latest interviews and podcasts about ALS
Detox Your Body and Boost Your Immunity to Help With Your ALS Journey
Join Dr. Shel’s Detox & Immunity Challenge!
Join me for this training to support my community with the most important, key points on detoxification and how you can impact your immune system.
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BE THE CURE
We are all soldiers in the battle to defeat ALS, committed to drawing resources to those affected by this disease. Our medical and research teams are dedicated to finding treatment options to help manage, treat and eventually cure ALS and we invite you to help raise awareness and be a voice for those individuals and their families who suffer with ALS. With your help, we can work to find a cure and treatment for ALS and help thousands of families who are battling this challenging disease. Our fundraising efforts go directly to research towards finding a cure for ALS.
ALS Heroes believes that ALS is a multifaceted disease which calls for a cocktail of therapies and a combination approach of functional and traditional medicine.
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NUTRITION & Lifestyle
Our philosophy at ALS Heroes is healing begins within. To learn about functional medicine approaches for different aspects of healing, tune in to:
Life consists of the past, the present and the future. The past has departed does not exist anymore. The present is not an existence. It is in constant motion. It is fleeting. Constantly replaced with another present, then the next, then the next. There is no...
What is Disease? In simple terms, Disease is Dis-ease: life with disease is not easy. However, disease is merely a circumstance, the background and context of your existence. It is not and could never be the core of your being. It does not define you. When we are...
Through this battle, I have seen what True Courage looks like. True Courage is not denying the cards you have been dealt. Rather, it is knowing that you can still win a game with a bad hand. And when the odds are not in your favor, you keep moving, knowing there are...
The Lalji ALS Family Award
The Sean. M. Healey & AMG Center for ALS at Massachusetts General Hospital through the generosity of Drs. Shelena and Ayeez Lalji, established the Lalji Family ALS Award in honor of the important scientific work being done in ALS. This new award will recognize an individual or team of investigators for excellence in their transformative scientific discoveries focused on repair of neurological function in ALS.
2021 Llaji ALS Award Winner
The first annual Drs. Ayeez and Shelena Lalji & Family ALS Endowed Award for Innovative Healing to Professor Michael Coleman, University of Cambridge and Professor Marc Freeman, Oregon Health & Science University for their excellence in transformative scientific discoveries focused on repair of neurological function in ALS. The award was virtually presented to the team during the 32nd International Symposium on ALS/MND by Merit Cudkowicz, MD, MSc Director of the Healey & AMG Center at Mass General and Drs. Ayeez and Shelena Lalji.
The review committee consisting of clinicians and scientists unanimously selected Freeman and Coleman as the inaugural recipients of the 2021 award for their groundbreaking discovery of key regulators of axonal health and degeneration (NMNATs, SARM1) enabling drug discovery to improve and promote axonal health in ALS and other diseases.
“Professor Michael Coleman and Professor Marc Freeman are incredible investigators in the field of axonal health and degeneration and their fundamental discoveries have facilitated drug discovery in this area. We are excited that they are part of the ALS community and very pleased to honor them with this award,” said Cudkowicz, who is also chief of Department of Neurology at MGH.
“The progress made in this research field since we identified the WldS gene has been greater than anything we could possibly have imagined at the time, and it is especially exciting that the pathway it blocks is now being directly implicated in ALS and other human diseases,” says Coleman. “It is a great honor to receive this award and I hope the attention it brings to Wallerian degeneration research will accelerate the progress already being made towards therapies.”
“It is inspiring to see the field moving forward so quickly and the potential impact that studies of Wallerian degeneration could have on human diseases like ALS coming into focus,” said Freeman. “Studies of WldS/SARM1 are reminders of how fundamental basic research can lead to unexpected and important advances in our understanding of human disease mechanisms. It’s truly an honor to receive this award which the Lalji Family has generously endowed and we hope it stimulates even deeper exploration of axon biology in the context of ALS.”
“When my husband, Dr. Ayeez Lalji, was diagnosed in 2017 we decided, as a family, that we would change our mindset from tragedy to transformation. We are committed to helping transform the management, research, and cure for ALS,” said Dr. Shelena Lalji. “Our foundation, ALS Heroes, will continue to work with world experts to bring solutions for regaining function to all those living with this devastating illness.”
The Drs. Ayeez and Shelena Lalji & Family ALS Endowed Award for Innovative Healing is an annual, global prize to recognize an individual or team of investigators for excellence in their transformative scientific discoveries focused on repair of neurological function in ALS. The goal of this prize is to identify therapies and modalities to regain lost function in people living with ALS. To learn more about this $40,000 USD prize and how to nominate an individual or team for the annual award, click here.
For more information about the Sean M. Healey and AMG Center for ALS, please visit the website.
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Hello friends. I have some tough news. Late last year I was diagnosed with ALS. I have the best medical care in the world and the greatest support. My dear husband Danny has been an angel. I will get well. In the meantime, we fight and go forward. Keep us in your thoughts.